Sheela Upadhyaya joined FIPRA International as a Special Advisor in the healthcare practice.
Sheela has worked as an Associate Director of the Highly Specialised Technology programme at the UK National Institute for Health and Care Excellence (NICE) since 2015, responsible for running the programme to evaluate medicines and technologies for rare and ultra-rare conditions for commissioning in the National Health Service (NHS).
She has extensive experience in understanding issues facing companies and other stakeholders when trying to secure access for medicines for orphan and ultra-orphan conditions. These include policy challenges and developing innovative access arrangements in liaison with industry, clinicians, patients and the NHS.
Prior to joining NICE, Sheela commissioned rare and ultra-orphan disease services in the NHS, delivering improvements through collaborating with industry, clinicians and patient groups.
Sheela has co-authored several papers that discuss health technology assessment (HTA) methods for assessing the value of orphan medicines and has presented at many conference panels on the subject.
Sheela has a passion for partnership working and believes that collaboration across the sector is the key to delivering high quality outcomes for all.